Where to look for help
Palliative Care resources
|
|
Together for Short Lives is
the leading UK charity that speaks out for all children and young
people who are expected to have short lives. Together with everyone
who provides care and support to these children and families, we
are here to help them have as fulfilling lives as possible and the
very best care at the end of life. We can't change the diagnosis,
but we can help children and families make the most of their time
together.
|
|
|
SWAN stands for 'syndromes without a name'. It is not a
diagnosis, but a term used when a child or young adult is believed
to have a genetic condition and testing has failed to identify its
genetic cause. Syndromes without a name are also referred to as
undiagnosed genetic conditions, unknown genetic conditions or
undiagnosed genetic disorders. Find out what support is available
from SWAN UK.
|
|
|
Jessie May Children's
Hospice at Home
|
|
|
Children's Hospices South
West
|
|
|
Lifetime
Community Nursing and Psychology Service
|
Bereavement resources
Children's Funeral Fund in
England
The government has launched the new Children's Funeral Fund in
England. The new fund can help to pay for some of the costs of a
funeral for a child under the age of 18- or a baby stillborn after
the 24th week of pregnancy. The burial or cremation must take place
in England. It is not means-tested: what a parent earns or how much
they have in savings will not affect what they get.
The fund can help pay for:
- burial fees
- cremation fees, including the cost of a doctor's
certificate
- a coffin, shroud or casket (up to a cost of £300).
More information about the Children's Funeral Fund is available
here: https://www.gov.uk/child-funeral-costs
Other helpful resources and information can be found
below:
|
|
The Winston's Wish charity offers
free, accessible online grief support to children and young people
(aged 25 or under).
Helpline: 08088 020 021
|
|
|
The Rosie
Crane Trust provide a number of services aimed at
supporting bereaved parents including a helpline, drop-in centres
in Yeovil and Taunton, befriending service, and subsidised
counselling.
|
|
|
|
2 Wish Upon A
Star provides bereavement support for families who live in
Wales who have lost a child suddenly and traumatically.
|
|
|
|
The Lullaby Trust offer a
supportive and confidential space for anyone affected by the sudden
or unexpected death of a baby or young child.
Bereavement support helpline:
0808 802 6868
|
|
|
Child Death Helpline is
staffed by volunteers, who have themselves lost a child. All
of the volunteers are trained, supervised and supported by
professional teams within The Alder Centre at Alder Hey Children's
NHS Foundation Trust.
Helpline: 0800 282 986
|
|
|
The Child Funeral
Charity can help with funeral costs, practical
advice and guidance.
Helpline: 01480 276088
|
|
|
A Child Of Mine provides emotional and
practical support to bereaved parents and families.
Contact: 01785 785819
|
|
|
There are many practical matters to attend to when someone
dies. Bereavement Advice Centre
supports and advises people on what they need to do after a
death.
|
|
|
Children of Jannah support grieving
Muslim parents and families.
|
|
|
The Compassionate Friends is
a charitable organisation of bereaved parents, siblings and
grandparents dedicated to the support and care of other bereaved
families.
Helpline: 0345 123 2304
|
|
|
Contact - for
families with disabled children can provide practical support
and advice.
Helpline: 0808 808 3555
|
 |
Child Bereavement UK supports
families and educates professionals when a baby or child dies or is
dying, or when a child is facing bereavement.
|
 |
The
Childhood Bereavement Network (CBN) is the hub for those
working with bereaved children, young people and their families
across the UK.
|
|
|
The Harbour provide professional
counselling and psychotherapy to people affected by
life-threatening illness or who are bereaved.
|
