Osteogenesis Imperfecta
The Highly Specialised Osteogenesis Imperfecta service is one of
four specialist centres commissioned by NHS England. It was set up
to offer a multi-disciplinary service to children and young people
with Osteogenesis Imperfecta. The Bristol Team covers the
south-west of England and also provides support to children in
South Wales on a case by case basis. Occupational Therapy for the
Osteogenesis Imperfecta service is provided on an in-patient,
out-patient input and community basis.
The role of the Occupational Therapist working with a child with
Osteogenesis Imperfecta includes:
- Advice on appropriate handling, positioning and managing daily
cares (dressing, changing nappies etc) for parents of infants /
toddlers to prevent fractures and promote development.
- Provide detailed assessments and treatments to promote and
maintain functional independence.
- Assessment and recommendation of equipment for school and home
environments including wheelchairs
- Liaison with orthopaedic surgeon regarding planned surgeries,
and managing fractures to ensure safe discharge from hospital
- Provide targeted rehabilitation following fractures.
- Provide education packages to nurseries, schools and child care
providers to maximise inclusion
- Liaison with professional peer groups nationally to develop
national guidelines, audit and research.
- Provide support /education to other healthcare
professionals.
Useful Links http://www.brittlebone.org/
