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Useful websites

South-West based parent-run organisations for families:

Heart Families SW

South West Children's Heart Circle

ND Heart Babies

National parent-run organisations for families:

Down's Heart Group

Little Hearts Matter

Max Appeal - supporting families affected by DiGoerge syndrome

Ebsteins Anomily

Arrythmia alliance

Cardiac risk in the young

SADS UK

Marfan Association UK

Heartline

Websites for young children through to transition:

British Heart Foundation

Sommerville Foundation

Global medical centres

Cincinnatis Childrens Hospital Heart Encyclopaedia

Melbourne Paediatric Cardiology

Useful links for families and professionals:

Safe and Sustainable 2011 - information about the previous review of children's cardiac services in England

Useful links for healthcare professionals

The Paediatric Cardiac Intensive Care Society

The Association of Paediatric Anaesthetists

UK Paediatric Intensive Care Society

The Society of Perfusionists

Paediatric Intensive Care Audit Network