Pulmonary Hypertension service
The service is led by Professor Robert
Tulloh and cares for patients of all ages with Pulmonary
Hypertension from young babies to older adults, including those
with Down's syndrome. Such patients have complex needs and we
therefore have a multi-disciplinary service supported by
clinicians, echocardiographers, psychologists, nurse specialists,
exercise physiologists, cardiac imaging (MRI and CT). The clinics
provide outpatient care for children and adults from Wales and the
South-west of England. They are part of the National Pulmonary
Hypertension Service and meet these standards of care, jointly with
the Hammersmith Hospital and Great Ormond street Hospital, London.
Each clinic is arranged so that most investigations can be provided
`on the day' for our patients who may travel long distances,
therefore each appointment may take up to three hours to allow time
for reviewing results and explaining these to patient and their
families.
There is an active research programme as part of this service
which aims to improve the care we can provide to our patients.
Current projects include assessments of lung function and
inflammation, response to viral infections in the intensive care
unit, phase three drug trials, psychological intervention with
mindfulness to improve breathing and anxiety, patient reported
outcome measures, studying the molecular pathway in pulmonary
arteries, novel techniques of assessing right ventricle and
pulmonary artery responses to pulmonary hypertension. We hope that
these projects will lead to better care and an improved outcome for
our patients.