Support

If you have haemophilia there are lots of people around to support you, both with the management of your condition and also the impact that this has on how you feel or decisions that you need to make about what you want to do in life.

The paediatric team will support you as you start to think about transition, the team includes doctors, clinical nurse specialists, physiotherapists and alongside this a psychologist. There is a clinical psychologist in the team because it is recognised that having haemophilia can be stressful, worrying, get you down and at times be frustrating. All of these feelings are normal and not everyone will need or want to see a psychologist. You or your family members may, however, find it beneficial to meet with the psychologist if the feelings are severe or have persisted over a long period of time. Please speak to your team if you think seeing a psychologist could be beneficial.

You can contact the children's haemophilia team on 0117 342 8721 or 0117 342 8145 on weekdays. If you need support at night or weekends then you can contact the hospital on 0117 923 0000 and ask for the on call haematology consultant or our Emergency Department on 0117 342 8666 for advice and to let them know you need to attend.

When you are ready and move to the adult haemophilia team you will meet members of the adult team, these include doctors, clinical nurse specialists and physiotherapists. If you need to contact the team then during the week you can phone 0117 3421872 or email haemophilia@uhbristol.nhs.uk at night and weekends contact 0117 342 2016. You can also contact the team through the main hospital number 0117 923 0000. You can read more about the centre here.

Alongside the support of the team there are lots of organisations that you may find helpful. You can find out more on the links below:

You may also find the below websites helpful:

You can read about the experience of one haemophilia patient here.