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Transition was good. Everyone was friendly, helpful and caring



Transition will start when you are a patient with the Children's Haemophilia Centre. You might come to the Bristol Royal Hospital for Children for all your appointments or if you don't live near Bristol might see members of the haemophilia team in outreach clinics and only have to come to Bristol occasionally depending on how severe your condition is.

When you move to adult services your care may continue to be managed in Bristol in the Bristol Haematology and Oncology Centre or you may be seen in a local hospital.  Wherever your treatment is managed the Bristol Haemophilia Centre can support you. They provide 24-hour open access treatment and advice for people with haemophilia and related conditions. Bristol Haemophilia Centre is the only Comprehensive Care Centre (CCC) for Haemophilia in the South West. 

The centre provides a range of services for people with haemophilia. This includes:

  • emergency treatment of bleeds
  • regular assessments, reviews and screening
  • physiotherapy
  • genetic testing and counselling
  • investigation of patients with bleeding and thrombotic disorders
  • education for patients and carers
  • support and counselling
  • information and advice for health care professionals, employers and schools

The haemophilia team also work with other specialities, including orthopaedics, hepatology (liver care), gynaecology (including pregnancy advice and counselling), HIV and dental care.

What should I do if I need treatment?

It can be important to know what to do if you have a bleed or need treatment quickly. If you live near to Bristol and have a bleed and need to come to the centre for treatment, please telephone beforehand to let staff know you are coming. If you are not sure whether you have a bleed or need treatment, please telephone the centre for advice. If you have an accident you should go to the Accident and Emergency Department at the Bristol Royal Infirmary. It is important to show them your bleeding disorder card so that the haemophilia centre can advise staff about treatment.

If you are admitted to another hospital either in an emergency or for planned treatment make sure you show them your bleeding disorder card so that staff can be advised by the centre about treatment.