Location
The Barth Syndrome Service is based in Bristol. This service is the specialist centre for the whole of the UK.
There are many healthcare professionals in the Barth Service and most of these professionals provide care for both children and adults. When you move to adult services, you will be looked after by the adult Cardiology Consultant, this is usually the only change in who provides care to you from the Barth Service.
When you are under 18, your outpatient appointments will be in the Children's Hospital. When you move to adult services, you will still come to Bristol, but your appointments with the Barth team will be in the Bristol Royal Infirmary or the Bristol Heart Institute.
If you need to stay in hospital in Bristol, you might also see some changes. When you are under 18, you would stay in the Bristol Royal Hospital for Children. As an adult, if you have to stay in hospital in Bristol, you will stay in the Bristol Royal Infirmary which is next to the Children's Hospital.
The main differences between the hospitals are the visiting times and facilities. You can find out more information on the hospital website here. Although usually family and friends can't stay overnight on wards in the adult hospital, staff know that it might make you feel and a bit anxious and so do ask if you feel that it would be helpful to have someone stay. You can talk about this with your team or someone on the ward when you are admitted.




