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Barth Syndrome

Travel

If you are planning on traveling, either on holiday or as a more extended time away it is also good to make sure you have planned sufficiently. Before you go on holiday you should always ask for a letter from your local hospital, which will contain medical information you need including your medicines. This letter will also contain details of who to contact if you become unwell and need to go to see a doctor. If you do feel ill you should always go straight to hospital and explain about your condition and the fact that it can cause a low neutrophil count and infections. Make sure that you have enough medication for your travels too. When travelling outside the UK it is important to have an appropriate level of travel insurance. If you are unsure how to access insurance and what level of cover you need please contact the Clinical Nurse Specialist.