Driving might be a skill you want to learn and can greatly enhance your independence and help manage your fatigue levels. Driving can be both physically and mentally tiring and dependant on your health and ability the DVLA may have some questions or guidance to be aware of. We would recommend that you contact the DVLA to talk about having Barth Syndrome in more detail.

The Motability scheme offers a range of ways to help you purchase a vehicle. If your receive the higher rate mobility component of the Disability Living Allowance or enhanced rate mobility component of Personal Independent Payments (PIP), this is something you may wish to consider, more information on this can be found here . Your physiotherapist and Occupational Therapist may be able to advise you further on what vehicle may be more suited to you (e.g. automatic rather than manual).