Useful links

The following is a list of websites which our patients have found useful, please note that the South West Cleft Service is not responsible for the content of external websites.

CLAPA- voluntary organisation supporting people born with clefts and their families

www.clapa.com

Beth's Cleft - story of a girl's journey through the cleft pathway

www.bethscleft.com

Healthtalk - people talking about their experiences of living with a cleft

http://www.healthtalk.org/peoples-experiences/pregnancy-children/cleft-lip-and-palate/overview

Changing Faces - voluntary organisation supporting people who have a visible difference

https://www.changingfaces.org.uk/

Outlook - NHS psychosocial service for people with appearance concerns

http://www.nbt.nhs.uk/our-services/a-z-services/outlook

Bullying and Teasing

http://www.bullying.co.uk

http://www.childline.org.uk

http://www.kidscape.org.uk

http://www.cafamily.org.uk/advice-and-support/resource-library/parent-guide-dealing-with-bullying/

22q11 Deletion / Di George Syndrome / Velo-cardio Facial Syndrome

www.maxappeal.org.uk

University Hospitals Bristol and Weston Toolkits

You can access our wellbeing toolkits with advice about how to navigate wellbeing alongside a health condition.

Optional resources

Website	Description
www.nhs.uk/livewell	The NHS website providing information and resources about taking care of yourself and your family.
www.nhs.uk/livewell/childhealth6-15	Information and resources about all aspects of child health, including eating, sleep, emotional difficulties, bullying and bereavement.
www.nhs.uk/oneyou	Information, resources and apps to help you build a healthy lifestyle.
www.whatwhychildreninhospital.org.uk	Helping children and parents prepare for hospital and answer some of their questions.
www.uhbristol.nhs.uk/patients-and-visitors/your-hospitals/bristol-royal-hospital-for-children/childrens-website/	Website for children about Bristol Royal Hospital for Children, including information about coming to hospital and about procedures and tests.
www.llttf.com	Living life to the full - short courses to help with common mental health difficulties.
www.cafamily.org.uk	Information and support for families with children with a disabililty.

Apps Note: all the apps recommended here are available for free through the NHS Live Well site (www.nhs.uk/livewell).	Description
Stress And Anxiety Companion www.companionapproach.com	Helps you manage stress and anxiety on the go.
Health Unlocked www.healthunlocked.com	The social network for health - find and connect with people with a similar health condition.
Health Fabric www.healthfabric.co.uk	Supports you with your management of long term health conditions.