ITB Initial Assessment
What happens in the initial assessment?
The child will have an outpatient appointment to be assessed by
a Neurologist and a Specialist Physiotherapist in the Complex
Movement Disorder Clinic. Current treatments will be reviewed, and
potential treatment options discussed as appropriate. This may
include a discussion regarding implantation of an intrathecal
baclofen (ITB) pump. We will require your child to undress to an
appropriate level to carry out a complete assessment. Please bring
appropriate clothing - shorts and a vest top is recommended. Please
bring any walking aids or orthotics which your child normally
uses.
What will a physiotherapy assessment
include?
Neurological examination:
- Reflexes
- Nature of tone, i.e.
spasticity/rigidity/dystonia/dyskinesia.
- Formal spasticity assessment using the Modified Ashworth Score
(MAS)
- Spasticity triggers and variability, e.g. pain/emotion/startle
response to sudden noise or movement
Musculoskeletal screen:
- Muscle power as appropriate
- Muscle selectivity
- Range of movement assessment
- X-rays if appropriate
Functional mobility, transfers and activities of daily
living:
- Some of this information may be gathered through a Quality of
Life questionnaire.
- Motor function assessment, as appropriate
- Gait pattern, as appropriate
- Upper limb function
Observations regarding:
- Patterns of posture and movement. This is sometimes best
captured using a video camera (relevant consent is always sought
prior to any filming)
- Posture/positioning issues
- Moving and handling difficulties
- Pain behaviour
- Upper limb function
What happens at the pre-operative clinic
appointment?
During this clinic appointment the procedure will be described
in detail to the family including the risks and possible adverse
effects. Potential disadvantages to ITB therapy will also be
discussed. Realistic objectives of ITB therapy will be discussed
and agreed collaboratively with the parents, including the
importance of regular attendance in ITB clinics for refill and
follows up. If ITB is not deemed to be the best treatment option,
patients will be discharged from the ITB service back to their
referrer with a report to detail the assessment findings.