How to contact us

For referrals please contact the Barth syndrome team /Barth syndrome generic email first: BarthSyndromeService@uhbw.nhs.uk.

Or write to:

Dr Germaine Pierre and Dr Effie Chronopoulou

Clinical lead NHS Specialised Services Barth Syndrome Service

South West Regional Metabolic Department

Bristol Royal Hospital for Children

Level 6

Education Centre

Upper Maudlin Street

Bristol,

BS2 8AE

Doctors: For urgent referrals contact switchboard and speak to the metabolic consultant on call.

OR contact:

Olivia Bennett

Barth Syndrome Administrator, Monday to Friday, 8am to 4pm.

Olivia.bennett@uhbw.nhs.uk / Olivia.bennett5@nhs.net

0117 3429335 (with voicemail)

Gillian Alexander

Clinical nurse specialist Tuesday to Friday, 9am to 5pm.

gillian.alexander@uhbw.nhs.uk / gillian.alexander7@nhs.net

07795 507294