The Bristol Haemophilia Centre provides 24-hour open access
treatment and advice for people with haemophilia and related
conditions. Bristol Haemophilia Centre is the only Comprehensive
Care Centre (CCC) for Haemophilia in the South West.
CCCs are centres of excellence for haemophilia, and to become a
CCC we had to pass a detailed audit of our services. There are
regular reviews to check centres still meet these standards. We
were re-audited in April 2019, and the auditors' view was that the
Haemophilia Centre offers a, "Safe and very caring service. The
multidisciplinary team work seamlessly across the paediatric and
adult services in a co-operative, flexible and supportive way".
To access the Adult Bristol Haemophilia Centre please follow the
signs from the main reception to location D701 on level 7 of the
Bristol Haematology and Oncology Centre. The Children's Haemophilia
Centre can be found on - level 6, The Ocean Unit, Bristol Royal
Hospital for Children.
The haemophilia team also work with other specialities,
including orthopaedics, hepatology (liver care), gynaecology,
obstetrics (including pregnancy advice and counselling) and dental
care.
We are part of the UK Haemophilia Centre Doctors' Organisation
and the National Haemophilia Database. More information about the
UKHCDO and database can be found on their website.
Adult patients
- Contact the Haemophilia office on 0117 342 1873 (Monday -
Friday, 9pm - 5pm) or email us on haemophilia@uhbw.nhs.uk
- Out-of-hours contact 0117 342 2011
- Haemophilia nurses can be contacted on 0117 342 1872
or 07557564943
- The haemophilia physiotherapist can be contacted on 0117 342
2245 or 0117 923 000 and bleep 3913
Children
- For the haemophilia nurse, please call 0117 342 8721 - (If
there is no answer during the day please contact 0117 342
8145)
- Night time and weekends, please call 0117 923 0000 and ask
for the On call Registrar for Paediatric Oncology or go to the
Accident and Emergency department, Bristol Royal Hospital for
Children, telephone 0117 342 8666
If you are a GP, please bleep the paediatric oncology registrar
on call.
More information about our Paedatric Haematology services
can be found on our website
here.
More information about transitioning and transfer to adult
services can also be found our website here.
Feeling unwell?
If you have a bleed and need to come to the centre for
treatment, please telephone beforehand to let staff know you are
coming. If you are not sure whether you have a bleed or need
treatment, please telephone the centre for advice.
If you have an accident
You should go to the Accident and Emergency Department at the
Bristol Royal Infirmary. Please show them your bleeding disorder
card so that staff can be advised by the centre about
treatment.
If you are admitted to another hospital
Please show them your bleeding disorder card so that staff
can be advised by the centre about treatment.
Our Service
We provide a range of services for people with haemophilia,
including:
- Emergency treatment of bleeds
- Regular assessments, reviews and screening
- Physiotherapy
- Genetic testing and counselling
- Investigation of patients with bleeding and thrombotic
disorders
- Education for patients and carers
- Support and counselling
- Information and advice for health care professionals, employers
and schools
Because many bleeding disorders are genetic conditions (i.e.
passed down through families), you may be asked to come to the
centre for testing if a member of your family has been diagnosed
with a bleeding disorder. Most people with haemophilia are born
with it, but in some cases people can develop acquired
haemophilia.
Information for patients
A variety of information leaflets are available to
download:
Other leaflets are available, please speak to the haemophilia
team.
More information about haemophilia and other bleeding disorders,
along with details on local support groups for your area, can be
found here at the UK Haemophilia Society www.haemophilia.org.uk.
