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About

Haemoglobinopathies are a group of blood disorders which include sickle cell disease (SCD), thalassemia, and rare inherited anaemias.

We are the haemoglobinopathy coordinating centre (HCC) for the South West region for sickle cell disease. We are the specialist haemoglobinopathy team (SHT) for sickle cell disease, thalassaemia, and rare inherited anaemias.

The local adult patient population is about 220 sickle cell, 60 thalassaemia and 30 rare inherited anaemia patients; requiring around 100 admissions per year, a weekly outpatient clinic, and multiple day ward and same day emergency unit (SDEC) attendances. 

The South West Region covers the following hospital trusts:

  • Gloucestershire Hospitals NHS Foundation Trust
  • North Bristol NHS Trust
  • Royal United Hospitals Bath NHS Foundation Trust
  • Somerset NHS Foundation Trust
  • Royal Devon University Healthcare NHS Foundation Trust
  • Torbay and South Devon NHS Foundation Trust 
  • University Hospitals Plymouth NHS Trust
  • Royal Cornwall Hospitals NHS Trust
  • Dorset HealthCare University NHS Foundation Trust

For paediatric information please visit our paediatric website.

For more detailed information please visit the South West Haemoglobinopathy Coordinating Centre website. 

The National Haemoglobinopathy Registry (NHR)

The National Haemoglobinopathy Registry is a database of patients with red cell disorders living in the UK. This new database collects data which is required by the Department of Health from Haemoglobinopathy centres. The central aim of the registry is to improve patient care.

Letters with more detail about NHR were sent out to all existing patients. New patients will receive a letter once they are registered with us and have not previously been registered by a different centre in England.