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Cleft Useful Links

The following is a list of websites which our patients have found useful, please note that the South West Cleft Service is not responsible for the content of external websites.

Topic:

Benefits

http://www.cafamily.org.uk/ (Benefits, Tax Credits and other financial help)

http://www.disabilityrightsuk.org/

Bullying

http://www.bullying.co.uk

http://www.childline.org.uk

http://www.kidscape.org.uk

http://www.bullying.org/

http://www.antibullying.net/

http://www.kenrigby.net

http://www.cafamily.org.uk/advice-and-support/resource-library/parent-guide-dealing-with-bullying/

Changing Faces  (voluntary organisation working to improve things for people with visible differences or disfigurement)

http://www.changingfaces.org.uk

CLAPA 

http://www.clapa.com/ (voluntary organisation supporting people with clefts and their families)

Craniofacial Conditions

http://www.headlines.org.uk/

Contact a Family (Voluntary organisation supporting families with children with special needs and condition related support groups)

http://www.cafamily.org.uk

Craniofacial Conditions

http://www.headlines.org.uk

Disability/Special Needs

http://www.dlf.org.uk/  (Disabled Living Foundation)

http://www.healthwatchgloucestershire.co.uk (Gloucestershire health information)

Adult Learning disabilities

http://www.bild.org.uk/

Ears

http://www.ndcs.org.uk/  (The National Deaf Children's Society)

http://www.swimstop.co.uk/ear_band-it.html (Supplier of headbands for swimming)

Feeding

For information and booklets on weaning, please contact the cleft specialist nurses.

http://www.cafamily.org.uk/advice-and-support/resource-library/parent-guide-feeding-and-eating/

Genetics

http://www.geneticalliance.org.uk

Homestart

http://www.home-start.org.uk/ (support at home for preschool parents)  

Outlook

http://www.nbt.nhs.uk/our-services/a-z-services/outlook (Psychosocial NHS service for people with appearance concerns)

Parenting

http://www.bristolparentinghub.co.uk (Bristol City Council Parenting hub)

http://www.mumsnet.com/ (Mumsnet)

http://familylives.org.uk/ (formerly Parentline Plus)

Self Esteem/Self Confidence

http://www.changingfaces.org.uk/downloads/Building%20Confidence%20full%20designed.doc

Siblings

http://www.sibs.org.uk/ (Information for adult siblings)

http://www.cafamily.org.uk/advice-and-support/resource-library/parent-guide-siblings

Sleep

http://www.cafamily.org.uk/advice-and-support/resource-library/parent-guide-helping-your-child-sleep

South Wales information

Please contact South Wales team for current information - http://www.wales.nhs.uk/sitesplus/863/page/39275

Toileting

http://www.eric.org.uk/ (voluntary organisation providing equipment, support and information)

http://www.cafamily.org.uk/advice-and-support/resource-library/parent-guide-pottytoilet-training

Transition

http://www.cafamily.org.uk/advice-and-support/resource-library/parent-guide-preparing-for-adult-life-and-transition-england-and-wales

Velo-Cardio Facial Syndrome/de George Syndrome

http://www.maxappeal.org.uk